Comments on: Biomedicine Update: An Innovation That Will Change The Way We Treat Heart Disease

By: lenrosen4

Tue, 20 Jun 2017 13:06:00 +0000

In reply to bigscar.

My thoughts are with you for your grandson and family. Our daughter with 3 heart surgeries and arterial dissections and repairs is now 33.

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By: lenrosen4

Tue, 20 Jun 2017 13:04:00 +0000

In reply to Annie Ritchings.

In stating preference, it is not the opinion of the writer, but that of the majority of cardiac surgeons. It was the same when our daughter was born with CHD. We heard it from the medical team looking after her. Fortunately there were others who suggested a very different protocol.

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By: bigscar

Tue, 20 Jun 2017 00:12:00 +0000

In reply to Annie Ritchings.

God Bless you. Our grandson is HLHS and is almost 16. He had the 3 Surgeries within his first 2 years. He is amazing and awesome and has a heart of Gold. I pray that he may have an opportunity for some kind biomedicine cure or procedure comes along for him. Sometimes he struggles but keeps going on. The Heart Transplant like you said is really a Temporary fix and comes with many complications. Prayers for you and your health.

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By: Annie Ritchings

Sun, 16 Oct 2016 20:10:00 +0000

Interestingly innovative article but I am shocked and appalled that this sentence was written,
“But ultimately the preferred treatment for any HLHS child is to find a donor heart.” Actually the preferred treatment is to try and have the child remain with their own heart for as long as possible. The author talks about transplantation like it’s just easier to handle. It’s very obvious that this author has never met a patient or parent of a patient who has been through an organ transplant. Most, not all, transplanted organs last between 8-10 years and then need to replaced.

I’m hoping with new procedures and biomedicine, HLHS can someday be a distant memory. In the meantime, organ transplant should not be the goal unless everything else has been exhausted and this all one is left with.

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